Wait and See. 

12 Jul

Let’s just wait and see. A pretty common sentence around here these past few days. As frustrating as it can be, I’m trying to remain positive and remember all the gains she’s had thus far. 

Ladybug’s sodium and potassium levels have almost normalized, the incision sites on her tummy are all healing beautifully, and her pain is finally under control. 

Sunday, Daddy-o brought her little brothers for lunch and a fun visit. We had a great time outside on the beautiful playground, and my almost 3 year old sang to her to calm her down when we returned to the room. The team started her on TPN (IV nutrition) a couple days ago – the downfall is that TPN will typically burn through IV lines. She currently has 3 IV sites, 2 of which are at the end of their lifespan.  Because of this and the fact that blood work sites are slim pickings, she has been scheduled to have a PICC line put in sometime tomorrow. A PICC – peripherally inserted central catheter, is a long, thin tube (called a catheter) that goes into your body through a vein typically in your arms, legs, or neck. Ladybugs last one was in her leg. The end of this catheter goes into a large central vein that directly drains near your heart . She will be put under for this procedure. 

Her tummy was draining through a foley line into a bag, but this morning it was clamped with the hopes of getting things moving. It seems to be working, and so far touch wood, no vomiting. 

Now we just wait and see. 

2 Responses to “Wait and See. ”

  1. Robert Jones July 12, 2017 at 2:22 pm #

    Hi Mellissa and Ed , thanks for the update on Amira. We pray that it works out for her.

    Sent from my iPhone


  2. Susan Stephenson July 16, 2017 at 12:01 am #

    Hi, Little Lady Bug Hugs and Family,

    I’m Susan. I live in Richmond, VA. So brave and courageous you are! I know these past days have been very hard. I am glad your PICC line is in and hope you’r e feeling better soon.

    Looks like a nice playground!I like playgrounds too! I like your penguin. Is the penguin a girl or a boy? What’s their name?

    Little Lady Bug, you are a very special, beautiful girl! I send love and prayers to you and your family. I’ll be looking for Mom’s next update and hoping you are home real soon. A big lady bug sends big hugs. xoxox

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