Wait and See. 

Let’s just wait and see. A pretty common sentence around here these past few days. As frustrating as it can be, I’m trying to remain positive and remember all the gains she’s had thus far. 

Ladybug’s sodium and potassium levels have almost normalized, the incision sites on her tummy are all healing beautifully, and her pain is finally under control. 

Sunday, Daddy-o brought her little brothers for lunch and a fun visit. We had a great time outside on the beautiful playground, and my almost 3 year old sang to her to calm her down when we returned to the room. The team started her on TPN (IV nutrition) a couple days ago – the downfall is that TPN will typically burn through IV lines. She currently has 3 IV sites, 2 of which are at the end of their lifespan.  Because of this and the fact that blood work sites are slim pickings, she has been scheduled to have a PICC line put in sometime tomorrow. A PICC – peripherally inserted central catheter, is a long, thin tube (called a catheter) that goes into your body through a vein typically in your arms, legs, or neck. Ladybugs last one was in her leg. The end of this catheter goes into a large central vein that directly drains near your heart . She will be put under for this procedure. 

Her tummy was draining through a foley line into a bag, but this morning it was clamped with the hopes of getting things moving. It seems to be working, and so far touch wood, no vomiting. 

Now we just wait and see.