Tag Archives: Gait Trainer

On The Move

2 May

As I was getting ready to write this update, for some reason the theme song from Days of Our Lives played through my head. I can’t believe that it has been 5 months since my last post.  I guess time really does fly when you’re having fun.  The school year is winding down, and I’m now starting to plan our HUGE summer adventure. I won’t give too much away just yet,  but, we’ll be packing up the kiddos and taking our Airstream down to and across the USA – meeting some very special people along the way. I’ll be starting a new blog to share our journey with everyone too, so I’ll keep you posted.

Ladybug has been doing really well. She is excelling in school – and has grown very close to her adorable little classmate (who is quite the princess too). She is also making choices for which activities she wants to do during her day, and loves going for walks in her gait trainer. She has even started walking towards her classmate to be near her. *heart melted*
Here is a picture of Ladybug at school doing her physiotherapy in her gait trainer outside.


There is alos another new fancy piece of equipment called a Dynamic Stander. I would have never thought that Ladybug would have liked this as she LOVES to move her legs, but, it is to entice her to stretch out her arms and touch the wheel to move around. She seems to be enjoying it as well.


Ladybug also got to be the “swing tester” for her school. They are getting a new fully accessible swing and she got to go to the company that makes it to try it out and give her seal of approval. According to her teacher, she got quite upset every time the swing stopped, which doesn’t surprise me as Ladybug is becoming very good at communicating her wants and needs now.










16 Dec

What a whirlwind of craziness, celebrations and anticipation these past couple of months have been.

On December 3, 2014 we celebrated Ladybugs 5th birthday. It’s truly amazing to see how far she has come in the past 5 years.




I am also 100% convinced that no doctor can ever predict her future.  Ladybug has been working with a fantastic Physiotherapist since last spring, and is beginning to move around independently in a gait trainer. Video to come once I can figure out how to remove the audio for privacy purposes.

The orthopedic surgeon was astonished as she thought Ladybug would never bear weight on her legs let alone use them to walk.

The biggest piece of evidence that my little bug is writing her own story is that she, against all odds celebrated her 5th birthday.  I remember doing the documentary for Mac Kids nearly 4 years ago and sharing our story including her life expectancy of no more than 3 years.  I’m unbelievably happy everyone was wrong, and now tell every new parent travelling down the same road to never lose hope.


The arrival of our little man in August has meant a few months of arranging and rearranging routines, however, it is worth every sleepless night.  Which surprisingly is mostly from Ladybug and not the baby. He is already showing how much he loves his big sister. He’s mastered pulling her hair and she’s mastered swatting his hand to let go of her hair.  The calmness they bring each other when they are side by side is picture perfect, and I know their love will grown every day.

Coming Soon: Ladybugs new wheels!