Archive | March, 2012

To See Or Not To See

8 Mar

When ladybug was a mere few months old we were told that she would most likely have little to no vision. As time went on nothing had really changed, all the docs could tell us was we would have to wait and see but it wasn’t promising.

This past year we have noticed our little girl turn towards sources of light, tracking toys that light up, and looking at 3D butterflies on her wall. With the help of the Blind-Low Vision team and the introduction of the Little Room so  many possibilities have opened up.

Our most recent visit to the ophthalmologist at Mac Kids led to a new discovery. Ladybug has an astigmatism in both eyes, quite a bit more so in the left. There was a CHANCE that glasses could help improve what vision she does have and it couldn’t hurt to try.

I didn’t even hesitate. If there is anything, anything at all that I can do to help my little bug live a better life I will do it. So the search began for the perfect glasses.  Pink ones, purple ones, teal ones, plastic ones, wire frames, round rubber ones that made her look like Mrs. Potato Head.  There were so many but not one fit her properly.  After a bit of research I found a company called Lafont that had a line of glasses for infants and children. The ones for infants had a very soft backing of silicone not only to help prevent the glasses from sliding down her little bridge but also for making them more comfortable. They were perfect. The only issue was that the company was in France and all the stores that were listed on the website were overseas. I pulled up a new page and asked the Google Gods if any places in Ontario carried the line.  After some searching I found that Glazier Opticians in Oakville carries Lafont, two seconds later I was on the phone and made an appointment to come in the following day to try on a few pairs.  As luck would have it the sales rep from Lafont would be in and have many options.

This is when we found THEE pair.  They are pretty, pink and perfect. Ladybug has now had them for nearly 3 weeks. Within the first few days she had discovered how to slide her finger down her forehead and pull the glasses to her mouth. The moment I saw her doing this I had flash backs to the great battle of the NG tube. (Nasogastric feeding tube) She used the exact same technique to repeatedly pull out her NG tube no matter how much Tegaderm tape we would put on her little cheek.

On the bright side she was using her hands to bring something to her mouth – albeit not the traditional way that most “normal” children do but that didn’t matter one bit.  Besides normal is far too predictable.

This past week she has been keeping the glasses on pretty much all day. It’s hard to tell if they are making a huge difference but I do notice little differences in how she looks at things. Her mirror ball and other toys in the little room will hold her attention for longer periods, she seems to be giggling more often, and just the fact that she is keeping them on suggests to me that they are helping her see the world in a new way.