Archive | December, 2014


16 Dec

What a whirlwind of craziness, celebrations and anticipation these past couple of months have been.

On December 3, 2014 we celebrated Ladybugs 5th birthday. It’s truly amazing to see how far she has come in the past 5 years.




I am also 100% convinced that no doctor can ever predict her future.  Ladybug has been working with a fantastic Physiotherapist since last spring, and is beginning to move around independently in a gait trainer. Video to come once I can figure out how to remove the audio for privacy purposes.

The orthopedic surgeon was astonished as she thought Ladybug would never bear weight on her legs let alone use them to walk.

The biggest piece of evidence that my little bug is writing her own story is that she, against all odds celebrated her 5th birthday.  I remember doing the documentary for Mac Kids nearly 4 years ago and sharing our story including her life expectancy of no more than 3 years.  I’m unbelievably happy everyone was wrong, and now tell every new parent travelling down the same road to never lose hope.


The arrival of our little man in August has meant a few months of arranging and rearranging routines, however, it is worth every sleepless night.  Which surprisingly is mostly from Ladybug and not the baby. He is already showing how much he loves his big sister. He’s mastered pulling her hair and she’s mastered swatting his hand to let go of her hair.  The calmness they bring each other when they are side by side is picture perfect, and I know their love will grown every day.

Coming Soon: Ladybugs new wheels!