I can’t believe it has been a year since I started writing Little Ladybug Hugs and shared our journey for the first time in Beginnings.
When I began writing that first post, ladybug was very ill in the hospital with a hide and go seek GI bleed. She was very fragile, had needed several blood transfusions, was in and out of the pediatric ICU, and the worst of all was that I didn’t know what to expect from one day to the next. Fast forward to today August 23, 2011 and in the span of a year the cause of the GI bleed was found and in turn a portion of her ulcer covered bowel was removed, a confirmed diagnosis of CDG type 2x was given, we’ve become a part of a wonderful and supportive new family, and ladybug is happy and healthy (for her) at 15.5 lbs, 24″ in length and nearly 21 months old.
Through out this past year one thing has remained consistent and that is my ladybugs smile. She somehow managed to smile through un-imaginable pain, through many tests and procedures, and on her good days and bad.
It is her smile that has helped me through this past year. No matter how tired or cranky I become after weeks of no sleep or hours upon hours of fighting for funding for an accurate feeding pump, I just have to look at her calming smile and everything else disappears.
Thank you for all the support and encouragement on our journey thus far and the support of Little Ladybug Hugs. There has been overwhelming amount of positive feedback, and of course it wouldn’t be life with out a bad apple here and there. If I have learned anything this past year it is that life is far to fragile and short to let the bad apples and sleepless nights get to you.
Happy 1 Year Little Ladybug Hugs! I can’t wait to share our adventures and triumphs to come in the next year.
Absolutely a beautiful and heartfelt message. Love you Liss and can’t emphasize enough how amazing you are!!!! Huge hugs to you both!!! Xoxoxo
Thank you Kris – it truly helps to be surrounded by incredible people like yourself. Even though you are “across the pond” you have always been there for me. xoxo
You are both the most amazing people that we have met on our journey!!!! Love you Bill, Lisa and Colleen
I will never forget the first time our girls were roommates on 3C – you commented on how much hair ladybug had and I was in awe of how big Colleen was. From that moment on our little divas became partners in crime, and I gained a friend who knows exactly what I’m going through and is always wiling to listen when I’m beyond frustrated. Thank you.