Less than 12 hours to go until the long-awaited surgery. My ladybug’s hemoglobin has been holding strong, she is such a trooper for a wee baby. God willing they will find the cause of the GI bleed tomorrow – fix it, and finally insert a G-tube (tube directly into her tummy for feeding) and a Portacath (permanent central venus line under the skin to make iv lines and blood drawings possible).
Throughout our stay at the hospital I have had the opportunity to meet many families. The thing about meeting people here is we all have one thing for certain in common – our children are all ill. Whether it be seizures, leukemia, recovering from a surgery, or in our case a whole lot of unknowns we can all relate in some way or another.
Being in such an environment has allowed me to put our journey into perspective.
While I’m putting my 9 month old daughters hair in pig-tails, wondering if her hemoglobin levels will plummet again, less than 200 yards away in the oncology ward a daddy is quietly picking his daughter’s hair off her pillow so it won’t upset her when she wakes up.
It really rings true the adage that no matter how hard you think you may have it – there are always others out there who have it worse.
Being in the hospital for the time that we have, has been both a blessing and a curse. The curse is rather obvious. I’d prefer if my daughter were home, and completely healthy as opposed to being in the stuffy hospital room in pain. However, the blessing is that the parents like myself can build support groups with each other which could lead to life long bonds.
It’s all about perspective.
Facebook Group: Little Ladybug Hugs
Little Ladybug Hugs 
A healthy dose of perspective is the best gift any mama can have. The fact that you and LB are going through all this and you still realize this is nothing short of remarkable! Also remarkable is LB’s head of hair. LOL! Thinking of you and LB and looking forward to your post about how things go! xoxo
I just wanted to let you know that I was thinking of you and decided to come to your page to see how things are going. I am so sorry that you guys are still at the hospital and for everything you are going through. I read your posts and my hearts breaks remember the frustration & the heartache of watching your child in a hospital. I read through all the posts since I last visited and I am stunned by how similar our thoughts are, I recall the same feeling of strength from the other families and we still have a strong bond with many of them. I am not sure how I would have dealt with this otherwise.
I am keeping all of you in our prayers and asking a little Angel I know to flutter above Amira and keep her safe.
Deb
Thank you so much Deb. It truly helps that there are others like yourself who know what I’m going through. My little princess is very strong willed and I’m hopeful we’ll be out of the hospital by October.