A few months ago when my ladybug was still in the hospital, I received an email asking if we would be interested in participating in a documentary and news article about our princess and her journey for the Mac Kids Miracle Weekend.
At first I was excited – what an incredible opportunity to share our story and most importantly shed some light on CDG. Then I started to get a little apprehensive. For the most part I am very open when it comes to sharing everything we have been through. However, there are a few things that I’m still having a hard time talking about especially when it comes to my daughters prognosis, and have therefore chosen to keep it within our family. If I were to agree to have this documentary air everything would be out on the table so to speak.
I pretty much put off replying to that email because I really didn’t know what to do. It was the encouragement from my spouse, family, and another mama who has spent the majority of her daughter’s life with so many unknowns like us, that convinced me to go ahead with it.
Well, that and the fact that the producer and the Mac Kids coordinator stopped by 3C (Mac children’s ward) to talk to me in person. Not really anywhere I could hide at that point.
Within the first 30 seconds of talking with Kelly the producer of the documentary – I felt at ease and had an instant connection. She had been reading LittleLadybugHugs, and mentioned her shock at the negative remark I received earlier that month stating that her claws came out a wee bit as well while reading the post. By the time she left I was completely at ease with my decision, and was looking forward to begin filming. Now to figure out which outfit to put ladybug in so she would be comfortable, but at the same time shine in the spotlight she so much deserves. (To my dismay, wardrobe, hair and make-up were not supplied – not for lack of trying on my part)
We would begin filming in May with Annette Hamm from CHCH (whom, might I add, is awesome). Fast forward to the moment when Jeremy, Kelly & Aaron from The Shooting Eye Corporation arrived to begin filming and the nerves set in. Between the wonderful crew, and Annette Hamm I felt like I was catching up with a bunch of old friends chatting about the ups and downs of our lives. The wee ladybug did fantastic as well, she was all giggles and smiles – that is until the camera started rolling then she was quiet, looking around, and taking everything in.
The filming wrapped up a couple of weeks ago. It was a wonderful experience – and I will actually miss the team from Shooting Eye. I’m so happy we went forward and filmed the documentary for Mac Kids. I can’t wait to share it with everyone (I’ll post a link to the video as soon as it’s released), but even more so I can’t wait for others to see what I see everyday and that is how incredible my daughter and all the other children with CDG are.
(From left to right – Ladybug, Kelly, Lisa from Mac Kids, and Jeremy)